Friday, September 2, 2011

Dream Big Drew!


All of Drew’s dreams came true today. After yesterdays request for a donut, we asked the doctor when he could get the feeding tube out. A speech therapist was sent in to test his swallowing. He passed and was rewarded with a snack pack. Drew’s eyes were wide- it reminded me of a 9 year old being handed a hundred-dollar bill. The snack pack had no chance, it was gone in three bites.



With a lot of help, Drew sat in the big chair today- it made him nauseous again. Then back into bed for the plasma-exchange. For lunch John, Julia and I escaped from the hospital to get the best BBQ in Orlando, 4Rivers. We returned to find Drew free from his feeding tube and snacking on a delicious edible arrangement. Fruit galore! 

All around this day has been great- Drew has shown big improvements. We are now thinking of what the next weeks and months will look like. He has been accepted for inpatient rehabilitation here at Winter Park Memorial- they think he will spend 2 to 4 weeks there but he can’t start until he is medically stable. He is in pain now and they are giving him some meds for it.

The rehab won’t stop there- but that is as far as we are thinking ahead right now. If I’ve learned anything it’s to take it one day at a time. It scares me to think of next month but I know God will give me what I need to make it through today. I’ve got to run, we are moving out of ICU… finally!

8 comments:

  1. Wow, great news he is beginning to eat again!

    Dan Keller

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  2. Please know that we are praying for you. My father had Guillain Barre. There is a group that puts out a newsletter every qrt with info related to this awful syndrome. I am confident that Drew will make a full recovery. Keep up the physical therapy!!!! Very important to keep moving even when you don't want to. Help him move his fingers, toes, etc, etc.
    Deborah Allen

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  3. Continuing to pray - especially for endurance & a tangible sense of God's presence. I'm so glad Drew seems he might escape a breathing tube! So so glad for the exit from ICU!
    Deb Wenni

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  4. I hear all good news today. withney know that you are passing a great test of loyalty, and the result is gonna be so wonderful for the rest of your life. Remember this chance that has been given to you and you are so lucky, so is Drew Jan. you ensured your love and your life by tasting and tolerating this bitter thing you are suffering from and i know how you are feeling. Trust me Whitney it is worth to be there with him. Good for you two. love and pray for both of you.

    Jawed Ghaznawi

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  5. Glad to hear that the feeding tube is out. Let Drew know that we love him. Ava and Elana ask how he's doing several times a day.

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  6. It is wonderful to hear that Drew is eating! Our love and prayers are being sent your way. Love, Jim and Debbie Bedell

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  7. PTL for Snack Packs and Edible Arrangements!! Great news to be out of ICU. Hopefully our care package will find ya'll! xoxo Sue

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  8. YES!!!! When will he be able to take visitors??? (especially those who bring even more junk food???)

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